Another day in the hospital, I’m hoping to hear some good news tomorrow about going home. My blood count is still the same as yesterday. Hasn’t gone back up or down. I’m still a little concern that it drop so quickly. I still have some pain but not as bad as the pain I had when I came here. I’m hoping to receive some good news later tonight or early morning when they come do some lab work on me. I don’t really have much to post about. I have been in bed most of the bed. Little homesick, suppose you can say I miss the little one’s. I wasn’t there when my little lady went to daycare for the first time. I hope it went good for her, guess I find out tomorrow when I go home. I’m so thankful for all the prayers & encouraging words, truly means a lot to me. I see the shift is changing, with more new nurses tonight. I actually got to know the young lady last night, she is a few years younger than me who recently just move from here. I thought she didn’t talk.but she was just worry about bothering me and making sure I got plenty of rest.
Tag: sickle cell disease
Day 6, Living With Sickle Cell Anemia
Good Morning, Another Lovely Day and still stuck in the hospital. As of right now, I don’t know when I’m going home. I haven’t seen the doctor today or yesterday. I thought I would have a doctor that would be on call for the doctor I had during the week. I suppose I was wrong. I had to change rooms yesterday. I have a bigger room, which I’m loving I must admit. I had some more old nurses. I find out this morning, little lady doesn’t want to talk to me she wants to come and see me. I hope that explains why she hasn’t been taking my calls. Oh yea I was regretting moving to the room I have because of the person next door. I believe she is older woman. She keeps crying out help her help her. I didn’t know what was going on with her. I do have some nice nurses, so thats good. I do hope to receive some good news tomorrow when I do see my doctor. I hope my blood count be still on point since the last time it got check was two days ago. This time around I haven’t really have the strength to post or comment. I know once I’m out the hospital I have a lot of reading to catch up on. Well just saw the doctor, will be getting some blood work done to see how my blood looking. I hope to share some good news on the next post with you all. For some odd reason, my blood pressure isn’t looking good for me. It has been very low . I’m still having some pain, so still have to ask for pain medicine so I can get some sleep. If you wondering how long I been working on this post, let me tell you all freaking day! lol! I just got some sad news 😦 my count his drop some and I hope it doesn’t drop any tonight. It hasn’t drop enough to get enough unit but its not 9 anymore. I don’t know how I feel about all this. I believe I’ll get me some rest, since I’m not feeling my best. I do hope each and everyone of you is having a Bless Sunday! God Bless 🙂
P.S Thank you all for your prayers and kind words, truly means a lot to me! God Bless 🙂
Day 5,Living With Sickle Cell Anemia
Good Afternoon, Had rough night! I’m getting use to the port, actually started using it yesterday. So happy that I don’t have to get stuck anymore! YAY! Had accident with one of the nurses last night, I thought I had lost my pc. She knock my poor baby off the table and hit the hard floor. So happy she didn’t break because she not even two months ole yet. The nurse was like I’m not worry about buying you another one, I can do that. I just don’t want you losing your school work. So I receive a unit of blood last night, because they were worry about it dropping some more. I don’t know when I’m going home just yet. I’m still having some pain, which isn’t a good thing. 🙂 I did receive good news my count went up with the one unit. I was worry that it wouldn’t go up much since last time it didn’t move much. Sad to say little lady still not taking my calls. I don’t know how I feel about that. I don’t know if she think I turn my back on her and not coming back or she just holding a grudge on me. I can’t wait to get home so I can have a serious talking with her. I enjoyed hearing my little man try to talk while on the phone. More like whine because his uncle took his fork from him. I can’t believe I’m missing them this much. 😦 I know I say I’m thankful all the time for all the encouraging words and prayers from you all. It truly does mean a lot to me. I shall keep you all updated on when I go home and whatnot. I know I’m off to the end of the month with school. I must admit I’m excited about that. God Bless 🙂
Day 4, Living With Sickle Cell Anemia
Good Morning,Finally decided to make it over to posting and reading comments. I’m so touch by every single one of you. I’m still here in the hospital 😦 I had a rough night last night, and my blood count drop. Sighs! It was 6.9 this morning, they want to make sure its one thing or another before they give me transfusion. I wasn’t happy to hear it drop again. I was hoping to have more good news to share with y’all today. I guess I will try to tempt some make up homework and get it in sometime today. I have been putting it off long enough. I’m ready to go home so I can have some real food. as you can see I don’t have much to talk about today. I do have some wonderful nurses today. 🙂 YAY! I hope each and every one of you have a Bless Friday! God Bless 🙂
Day 3, Quick Update
I’m back to share how it all went down today. OMG im so sore where I got my port at so its hurts to really move and to type, so this will be short post. I haven’t had the chance to make it to my comments so do bare with me. I’m not ignoring you. I have a nice nurse tonight, his name is Alex. His a funny guy 🙂 I was so glad to have something to drink, I can’t even tell you what all I had to drink. Of course I was excited about eating as well. I finish my subway sandwich it was good. I’m so thankful for all your prayers and comments. They truly mean a lot to me. Oh yea a little good news is I find out a few hours ago my blood count is going back up! YAY! still low but not low as it was the other day. Something tells me I’m forgetting something, if that the case I make sure to mention it tomorrow lord will. Many Blessings 2 each and every one of you! 🙂 Oh yea I must admit I have been getting much sleep since I been back from surgery. I got to meet the doctor earlier today before it came down to have the surgery, such a nice man. And plenty of nice nurses as well. 🙂
Recovering/Information On Disease
I seem to be stuck with cold ever since I got out the hospital and can’t get rid of it for some odd reason. I never had this problem before getting over cold. The New year is almost here and have two new doctors to see coming up in a few weeks. One is for my headaches I was getting all the time. I don’t get them as much right now, which is a good thing. But after doing more searching about my disease and learning about why I could be having headaches everyday. I learn something that I didn’t know that it could be cause of a tumor. Since I’m the only one in my house hold with my illness, its good for me to study on it and learn as much as possible. You do know with seen the different doctors I do have, they never mention anything about me having tumors. I don’t know if that a good thing or bad thing, part of me make me think they don’t believe it could be that serious for me and then other is they probably know I can’t handle no more awful news. Also the other doctor appointment is about why I have so many antibodies in my body. Since its hard to find my blood type, I like to say thank you to each and every one of you whose been praying for me and still praying for me and who donates blood or know someone who does. Last time it didn’t take long to find my blood type. I was so happy! I was just in the hospital that long because of a slow ignorant doctor. Seem like he don’t know how to talk to a lot of people’s, and think people s have to take his lip and attitude. Thats a negative! Hey my mouth is working process. I had a good Christmas, wasn’t down in my body or stuck in hospital, did have a doctor appointment before Christmas. It went sorta good and sorta not. Yay for getting took off one medicine and boo for getting put on a new one that suppose to be better for my headaches. If you don’t take medication on every day basic, you or truly bless, and don’t ever take it for granted. If some had read up on my disease because I havent made it back to do all that good stuff. That post should be up sometimes this week. Different ones with my disease can take the medicine to help them have less crisis, but to be honest I never really needed it before I got put on it when I was younger and it didn’t;t agree with me. I almost died in 06, so that’s when I got introduce hydroxyurea. I usually take Folic Acid, that been working for me every sense well shoo forever. Seem like I’m everywhere with my post today. I’m pretty sure more to come this week, hate to bore all of yall in one post. 🙂
I do love all my followers, you have truly been a BLESSING to me on my JOURNEY, can’t wait to see how 2012 goes for us. Many Blessings to each and every one of you, like to welcome all my new followers, and say glad to have you on my JOURNEY, can’t wait to get to know each and every one of you as the year goes out and as the new year comes in. God truly knows what he doing when he seen certain peoples in your life that you never expect to make a mark on you.
Scars
My scars
Tell a story
Some may think
Im addict
Im not Feenin
For drugs
Im Feenin
For nomore pain
My scars
Tells a story
Of me fighting
Sickle Cell Disease
My life
Is not yours
God gave me
This life
To share it and hopefully
Educate the World
On my illness
My scars
Tells a story
12/13/11
Poeticjourney
Working process!
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Dear God Letter
No news is good news so I have been told growing up
I’m waiting on phone call from my doctor nurses about my blood count. Trying to stay positive, I done already had my weak moment & broke down. I’m feeling okay, can’t say I’m at my best. I’m hoping for good news, normally I would have heard back in same day, but never went in on Friday or when it was so busy. And it’s holidays around the corner, not helping the stress. I’m praying for good news. Long as it’s not 6 or low 7 I’m good. Okay you probably thinking that’s not good, normally it’s not but if you new on my journey I have Sickle Cell Disease. I just want some good news. No news is good news Right? I was always told that growing up but its doesn’t help me feel better.
Dear God
I need you
I know I been coming to you
A lot lately & have so many
Wonderful peoples praying for me.
I’m coming to you for myself.
I’m struggling
I’m scared & and letting it all get
The best of me
GOD
I truly need you
I know we seem to have this talk
A lot lately.
I’m struggling
So many times I though
You abandon me (us)
I thought I was a mistake (illness)
Sometimes I still wish you left him & took
Me.
I know you did the right thing,
GOD
I’m asking for a lot
I really want good news about my
Health
I’m struggling on my JOURNEY
If I have to crawl I will
My pride may let me ask for help
Be the last thing I do
I’m working on changing completely
I’m struggling with Forgiving,
It’s holding me down
GOD
I’m so sorry!
Why is it so hard to let go all the angry
It’s eating me up so unhealthy for me.
DEAR GOD
It’s me PJ
I’m standing here, ready
To fall down at your feet
Sometimes feels like the weight of the
World is on my shoulders.
Master,
I need you
I’m walking holding my arms out
To be closer to you.
I know with you everything going
To be alright.
You’re Loving Child,
PJ
Fighting to make it to the rightful place.
11/21/11
PoeticJourney
I still haven’t heard anything and I had talk with GOD, brought me at ease. So many people’s praying for me I knew it was my time to go come to him with everything. I know he knows my heart, but It feel so much better to have it off my chest. As I said so many times before, I’m not perfect. I’m having a battle, but not giving up. I have been through too much to give up now. That’s with my health and getting where I need to be with GOD!
Awareness
Am I wrong for wanting more Awareness for Sickle Cell Disease? I was recently talking to someone about my illness and she was like I didn’t know you had it and that she didn’t know much about it but wanted to know more about it. How can I spread the word about it and not get to emotional about not having much Awareness for my disease? I want to be Advocate, to be one that mean I would have to open up more about who I Am, and How I am living and dealing with it for over 20years? I didn’t know about we had a month of Awareness, to have a month but not really hear much about it bothers me. But someone had told me they heard about it and saw a few things as well.
To live everyday and to be in pain a majority of your life sometimes getting to the point and just being unbearable. I smile on days I wanted to cry and just wish I wasn’t here anymore, but I knew it wasn’t my time to go yet. I know I haven’t blog much about my illness. I have been doing research on it for my English paper, so I have been learning new stuff each and every day. When I decide to spread more word on the issue I don’t want people thinking I don’t know what I’m talking about. I know I haven’t made it back to explaining what it is yet.
You’ll see more on these topic of Awareness, it’s time for a change and I’m on my way of making it happen in due time. Right now days have been hard due to my headaches getting the best of me at times.
GOD BLESS,
POETIC
Poets Afterthought 