Tag: sickle cell disease

Posted in AWARENESS, Sickle Cell Anemia

Day 1-3, Living With Sickle Cell Anemia

Posted on by poeticjourney

I know I mention to you all I wasn’t feeling my best Tuesday.  I woke up Wednesday morning in terrieble pain and ended up going to er later that day. My blood count drop so I’m in need of transfusion. I’m thankful to have some wonderful nurses taking care of me while bn here. Can’t say the same about my doctor, naw I’m playing his a cool guy. Wouldn’t trade him, I’m so ready for the 28 to get here so  I can see the Sickle Cell Specialist. I’m thankful for all the prayers from each and everyone of you, it truly means a lot to me. I’m still not feeling my best, but will do my best to keep you all inform on whats going on with me. Hopefully next time I have more to share with you all! God Bless 🙂

 

 

Posted in AWARENESS, Health, Sickle Cell Anemia, Update

Living With Sickle Cell Anemia

Posted on by poeticjourney

The month almost over and I must admit I’m excited. If you have been on my JOURNEY since the year came in! I have been in hospital every month since September! God has heard my prayer for the month of MAY to be good for me! 🙂 I haven’t been feeling my best, but hey I’m not in hospital bed hook up to machine. I actually had doctor appointment today, it went good. I have to go out and get some blood work done, so I can see how good it really went 🙂 I was supposed to get some lab done on my birthday, but it seem they thought they was finna stick me instead of using my port! I don’t think so. Last time I got stuck to get blood lets just say I didn’t enjoy the pain of getting stuck! The nurse had the nerve to move the needle around in me, because well the blood had mind of its own! lol! Back to monday they nurse never came and it started raining hail and whatnot. I was like I’ll come back because I wanted to get home. Once I get my labs back, I’ll let you all know how it went. I know I have been quiet a little this month, havent been feeling my best but just praying that it didn’t send me to evil place (hospital). I had a few visit before the month came in, lets just say my patience with ignorant doctors, have run dry. Seem the ER keep getting more ignorant one’s than intelligent one’s. I don’t know!  My blood count has been holding its on like around 7.5 or 7.6. I would love for anything higher if you know like I know, but always please it’s not 6.

 

I have some good news, I finally start seen the Sickle Cell specialist next month. I will keep you all updated about how it goes. I’m so thankful for all the prayers you all have rolling in for me, it truly means a lot to me. Go truly Bless me with some good friends! I do hope all is well with each and every one of you!

Posted in AWARENESS, God, Health, Love, My Journey, Sickle Cell Anemia, Update

Day 8, Living With Sickle Cell Anemia

Posted on by poeticjourney

I believe I start this post with some good news before I start it with negative news for my dear followers. I got the good news to come home today. I find out just how sick I truly was. I knew I was sick when I find out about my blood count was 6.9 then drop to 6 the same night. I find out had fluid in my lungs and that I had touch of pneumonia. I’m still not happy about my blood count, not as high as I would like it to be, but I’m praying it be just fine before my check ups in a few weeks. I think its in a few weeks. So much on my mind. Everythingelse look good, so it was good for me to go home. Blood count was going up, it was 7.8, and I was praying and hoping it would be 8. something, but it ended up dropping to 7.6. My doctor had the weekend off, but find out Monday that he was looking over my chart and x-ray from home. Now that a man that’s dedicated to his job and patients. I wasn’t crazy about the doctor that step in for him over the weekend, he didn’t say much like my doctor does. He explains everything.  I don’t want to make this post long.  I wonder since I got so sick so soon, that much mean the month of MAY is going to be good month. I say good month because its my BIRTHDAY! A few years I be tapping 30! WOW! Is all I can say.I’m so touch and thankful for all my followers that have been with me for the long run and the new one’s I have met on the way. I haven’t forgotten about you all, it’s just my health and school has been keeping me busy and haven’t got the chance to visit and comment like I would love.  You all have been a BLESSING to me on MY JOURNEY! I do hope all is well with each and every one of you! Sending many BLESSINGS TO EACH AND EVERYONE OF YOU! God Bless 🙂

 

GOD HAS TRULY BEEN GOOD TO ME, HE NEVER LEFT MY SIDE, EVEN WHEN I WANTED TO THROW IN THE TOWEL! THANK GOD FOR HIS LOVE & MERCY

 

I have slip on been more of ADVOCATE for my illness, I hope soon as I get done with this semester I be better at bringing more awareness to Sickle Cell Anemia!

Posted in Health, Jesus, My Journey, Sickle Cell Anemia, Update

Day 4-7, Living With Sickle Cell Disease

Posted on by poeticjourney

I do hope everyone had a good weekend and Easter. JESUS IS THE REASON. I’m still in the hospital, I haven’t got the okay to go home, so hoping to get it in the morning. Thank You all for the prayers and kind words of encouragement. The last time I posted about the hospital I receive 1 unit of blood, it was touch and go for a while because my count didnt wont to go up. I was so happy to hear it went up, but still low. I’m hoping it be 8 by the morning. I guess when they come around in the morning and wake me out my sleep I shall find out. Everything still not top-notch, but I’m alive and that all that matter. I was really shock that I got sick so soon and had to get transfusion when I just got one a few weeks ago. I was at the point of throwing in the towel, because I was just tired of hearing my blood count was low and like it wasn’t going to go anywhere. I must say I actually enjoying all the rest I’m getting, gave me time to catch up on homework when I had the strength to go there. 🙂 I have had some good nurses while I’m here so that always a plus. Have met some new one’s as well, and met some ole one’s I met long time ago. I’m not in much pain as I was when I came in, just a little every now and then.  I hope I didn’t leave anything out. I must say Im so thankful to have my port, because I know I wouldnt be able to handle getting poke and stuck when it came to getting blood work done! God Bless Each & Everyone Of You 🙂

Posted in Health, My Journey, Sickle Cell Anemia

Day 1-3,Living With Sickle Cell Anemia

Posted on by poeticjourney

I have being in hospital ever since Monday, I haven’t been feeling my best since the weekend and the pain got worse. I actually had doctor appointment Tuesday and was going to wait it out, but since I couldn’t get in touch with my ole primary doctor so I can get referral to go to my new one. I decided to cancel and go to E.R. Lets just say my lab came back fast because it was consider critical low. I’m not feeling my best still. I have to get transfusion. It actually was 6.9 when I arrive then that night it drop. Its taking longer this time for my blood, as you all know its hard to find my blood type. I haven’t been feeling my best, but decided to go head and share with each and every one of you. I’m so touch by all your comments and prayers. I do have some great nurses and doctors, that taking good care of me. I’ll try to keep you all updated from here on out. I do hope everyone is doing good. God Bless 🙂

Posted in Health, My Journey, Sickle Cell Anemia, Thankful, Update

Living With Sickle Cell Anemia(Update)

Posted on by poeticjourney

I don’t plan on making this long post, since I’m still not feeling my best. I know while I was in hospital I left off at Day 4. Lets just say things weren’t looking good for a while, but I was BLESS with a good doctor while I was int here. I know I had left off with telling you all I had bronchitis, but he was worry about  me getting acute chest syndrome, which I got back in 06 and lets just say it wasn’t looking good for me back then. It’s safe to say I didn’t get it. 🙂 My blood count went up to to 10 but it actually was 9.6 since for some odd reason I was dehydrated so it gave a false reading the first time. I can honestly say it still is 9.5. I actually got 2 units of blood my hospital stay.

 

 

 

Oh yea, they actually did fax my paperwork over to sickle-cell clinic finally but only prove me for 3 visits. Hmm, what can they find out in only 3 visits? So I’m just waiting for call from the sickle-cell clinic so we can get that rolling. Wow, took long enough right? I actually have change my primary doctor since I been home as well. I need one that can actually come see me when I’m actually in the hospital. Once again I’m so thankful, touch, for the prayers you all been sending my way. Your kind comments kept my spirits uplifted. I Pray All Is Well! God Bless 🙂

Posted in God, Health, My Journey, Sickle Cell Anemia, Thankful

Day 4,Living With Sickle Cell Anemia

Posted on by poeticjourney

Hello, and welcome to day 4. I’m still in the hospital, yesterday was actually a long day. I ended up gettng my tranfusion lastnight and didnt get finish to about two somethng this morning. As of right now my blood count is looking good, but its showing I’m dehydrated still so thats probably why  I’m still hurting some. Had to get some x-rays this morning, seem I have touch of bronchitis, I don’t know how I got it.  The doctor believe its the reason why I’m in the hospital because of it. I don’t know why its so hard for people to cover up there mouth when they cough. I’m so thankful for all the prayers, kind words you all have left me. God has truly BLESS me with some kind nurses and doctors. I’m not much with words tonight. I shall keep you all updated and make the next post longer. Till next time.. God Bless 🙂

Posted in Health, My Journey, Sickle Cell Anemia

Day 3, Living With Sickle Cell Anemia

Posted on by poeticjourney

Hello and welcome to another day with me in the hospital. Still waiting to get the confirmation about the blood tranfusion. I didn’t get much sleep lastnight, because they kept going and leaving out of here. My blood count has drop some more over the night. As of right now, I need two units of blood instead of one. Just got a visit from my blood doctor and it seems I will be rocking oxygen to help with the pain. I have been bless with some mre nice nurses today as well as lastnight. I’m so touch and thankful for all of y’all kind words and prayers, it does mean a lot to me. I shall keep you all updated as much as possible, I’ll be getting two units of blood for sure now. So I have to wait to both of them are here, so I an get them all in same day. I’m so happy SPRING is here, and I get to miss it all because I;m sick… :(, but I’m Alive, so I can’t complain. It could be so much worser then what it is right now. I do hope all is well with each and everyone of you.

Posted in Health, My Journey, Sickle Cell Anemia

Day 2, Living With Sickle Cell Anemia

Posted on by poeticjourney

I like to thank everyone for there kind words and prayers, I haven’t got to all my comments just yet, but have read them all. Truly touch my heart to hear you all praying for me. Early this morning got news I need to have tranfusion, my blood count has drop to 7.0! I’m not happy about it dropping because I believe it could’ve been prevented ahead of time. Before I came to hospital yesterday I receive some upsetting news, that my paperwork hasn’t been fax so I can see sickle cell doctor. Everytime I call and my blood doctor call they said they was faxing it over right then. We shall see how that goes. Its going to take awhile before they find my blood, so I have been told and I have been through this so many times in the past. Hopefully so many peeps done went out to donate blood 🙂 I do have a nice nurse today, the other nurse went home before she wasn’t feeling her best. Just waiting to see the doctor to see what he have to say. Thats all I have to share with you all for now. I shall keep you posted.

Posted in Health, My Journey, Sickle Cell Anemia

Day 1, Living With Sickle Cell Anemia

Posted on by poeticjourney

As you all know, I haven’t been feeling my best for the last few days. So I decide to go to E.R and well as you can see by the title, they decided to keep  me. I have had a long day, basically dealing with my visit to be honest. I don’t really have much to say tonight, because I’m hurting. I’m so thankful for all the prayers, kind comments and encouragment, truly means a lot to me. I’M BLESS TO HAVE MET SO MANY WONDERFUL PEEPS ON my JOURNEY. I hope everyone is having a Bless Night! God Bless 🙂