Posted in 2014, Death, family, God, poem, Poetic, Poetry

Rest On

As I layed in bed
Hurting.
You was fighting to live
God Bless Your family
They gave upon you.
When you needed them
To a fatherless child
Broken hearted mother
So many grieving individuals
My heartaches for you.
God Bless You
As you rest in paradise.
As I layed in hospital
Fighting to keep going.
You was dying
And leaving so many
Hurting and shock
God Bless the brokenhearted
4/1/14
PJ

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Someone from my area lost his life fishing over weekend. We had bad weather , but they discover him yesterday morning! Let your love ones know how much they mean to you! God Bless

Posted in 2014, AWARENESS, Health, My Journey, Sickle Cell Anemia

Day 1-3, Living With Sickle Cell Anemia

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Hey and welcome to my world. I have been in pain for a few days. Im In hospital, and hoping to go home soon. I know it won’t be with good news. Its been awhile since I been In hospital, and transfusions.  Right now my test came back to hurt my heart. I have a good doctor and some good nurses, had a problem with her lastnight. I have port for a reason and I don’t like when people try and bs me, talking about they can’t draw from it. So I gave the tech one chance and she didn’t want to do it, cause she knew the nurse was lying. Blood count has drop, its in the 7s, but still good for men but would love to be in the 8s. I hope everyone is well. I do have a feeling I’m forgetting so something, but I do update when it comes to me. God Bless

Posted in 2014, AWARENESS, heart, My Journey, Sickle Cell Anemia, Update

Living With Sickle Cell Anemia

thumbnailSCDToday wasn’t a good day! My pain has got worse since last post. I went to primary doctor, honestly didn’t do me no good! He treated me either kidney problems or either I got ulcer. I can’t sleep at night as it is. My sickle cell nurse told me if it get worse to go to hospital and get admitted! My primary wasn’t getting my sickle cell problem, I wasn’t worry about the problems he talking about! If I stress it kick my illness in worse 10 time worser! I can’t move or use both my arms to extent! My left side still bugging me. My second week of new term started today. So as you all know that been with me. This isn’t looking to good with stress. I have appointment with blood doctor tomorrow and I’m not even feeling him right now cause of all the pain I’m in. You can’t stick me! Nor check my blood pressure at this point in time. Now if they can get blood from my port that’s what’s up! But I ain’t having the abuse right now. To the next post. God Bless 🙂

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Posted in 2014, AWARENESS, Health, My Journey, Sickle Cell Anemia

Living With Sickle Cell Anemia

thumbnailSCDToday isn’t a good day. I’m so not enjoying the weather. Taking one day at a time, is easy said then done, when your body is screaming pain every which way. The E.R did call and check up on me yesterday, asking if I was feeling better then then day before, I told them no. I’m trying hold out to Tuesday, since I see my blood doctor. I don’t know if I can do that right now. My labs may have came back good, but my body is telling me another story, I don’t know what more to say.  I was glad I didn’t have a long wait Friday, only thing I didn’t like is the medicine they gave me. Seems my headaches are getting worse, migraine medicine not working anymore and I don’t want to up my doses to 100. Me and hospital seem to be at Whits in st the time been. My whole left back is either sore. I can’t lay on it, or touch it. I have pain shooting up. And my left arm is doing the most. Sighs… IMA love it when I have a day or even a week with of no pain. I’m on break to Wednesday, so thankful for that Blessing….

Posted in My Journey, Physical Therapy, Update

Physical Therapy

Today I had my first appointment at the rehab place. I must say she work me today, I didn’t feel it, to I got home and tried to get comfortable. I did the basic physical therapy while in hospital, but hell the work I did today has nothing on it. I’m hoping by next week, I’ll be back to posting my regular post especially updating ya’ll on the healing process. I believe that’s all I have to share with y’all for now. Like thank each and everyone of y’all for the prayers, comments, and likes. Truly means a lot to me. Do bare with me on approving and commenting. I do read them all. I pray all is well with each and everyone of you all. God Bless

Posted in AWARENESS, God, Health, My Journey, Update

Surgery Update

Hello Everyone,

So thankful for all the prayers and comments truly touch my heart! I’m home, actually came home yesterday! It wasn’t as bad as I thought, my God knew I could handle it all! I read the comments but couldn’t respond and.still can’t!  Everyone saying I’m doing good on the walking! It maybe with walker for now! But to hear nurses say how good I am when other people are struggling that been using them longer then me. I had a good team working with me. I had a little rough time! Fever after surgery, they couldn’t find out where it was coming from. My blood count held its own before and after surgery! Then well it fell and came back up and did it all over again. I had a great group of nurses on my team as well! Some I felt probably in wrong career because she just forgot a lot of stuff! Lol Talk about that another time! Time for me to crash, hope.share more soon.God Bless

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Posted in Health, My Journey, Sickle Cell Anemia, Update

What A Week…..

What a week I had! I was surposed to be having surgery the upcoming Monday, but unfortunately it got push back without my acknowledge. I actually had minor surgery Thursday! I had to have exchange to bring my blood count up so I’ve good to go pretty much! I believe 7.7 was good enough for me! A person who hasn’t had transfusion since April, but last two times I was hospitalized and got low as 5, couldn’t have transfusion no matter what do to having to many! Oh yea I was disappointed I couldn’t use my port to have the exchange! You all know how much I love and thankful to have it!  Had take a class to prepare me for the outcome on the 14! I’m hoping to get my term done this week and much needed rest. If I’m quiet you all know why! So do bare with me, and hope all is well with each and everyone of you! God Bless

Oh yea I got 5 units of blood, which brought my count 10! Hmm that special IV in my groin just bring my count upto 10! Yes, I’m feeling a little sarcastic about the matter! I did.have a good surgeon! So yeah

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Posted in Health, My Journey, Sickle Cell Anemia, Update

Day 4-5 Living With Sickle Cell Anemia

thumbnailSCDHey and Welcome to my World, I’m still in hospital and hopefully I get to come home tomorrow. I should know something in due time. I still can’t have transfusions, but it seem the meds they have me on is finally working and that makes me happy! I have been on some new meds since May, and ready to get off it. I’m actually on a lot of new meds, but this meds I really ready to get off because it’s interfering with some of my other meds, that I need on everything basic. Sighs. It feels good to finally get some sleep, I believe I’m still tired, but I’m actually on my last week of studies, and I need to try to catch up before the week is over with. So much to do in so little time. I have had some great nurses, had one rude nurse name Mary. Makes me wonder how she got a job to be Nurse Assistant, if all she does is complain, I would hate for her to be nurse, and she says she going back to school for it. Well, I hope peeps run the other way and don’t look back, I’m just saying. My bestie mom finally came home from the hospital the other day, and she is doing much better, but got heartbroken phone call, that she is not her self, she lost some of her memory. I spoke with her a few days ago, she knows who I am. It breaks my heart when strong woman a God is struggling the way she is. It’s truly breaking her daughter heart, because she want to take care of her mom and not rehab place. Doctor just told me not to long ago that my retic count has come up, I’m hoping to hear my blood count has come up as well. I’m praying for some good news. Looks like my head is everywhere with this post, please do forgive me. I have a lot going on with me at this time. Thank you all for the prayers, truly means a lot to me. I pray all is well with each and every one of you. God Bless 🙂

Posted in AWARENESS, Health, My Journey, Sickle Cell Anemia

Day 1-3, Living With Sickle Cell Anemia

Hey Everyone and welcome go my world!  I have been in hospital since Monday. I actually got sick Sunday night around 11, and knew I was in for rough night! My blood count was.7.9 when I arrived, now it 6.9! I know I mention in one of my post I had a cold, idk if that help kick in my sickle cell. Sounds like I I’m coughing up my lungs. Sighs! I have, some awesome nurses so that’s a plus in my book.  Be sweet if I could get some sleep! But my pain is making it difficult for me right now! Actually spoke to my doctor before he went on vocation, he was the E.R when I came in, so he fill the doctor in that’s stepping in for him about my situation. I still can’t receive transfusions right now. Another story for another time. If anything else comes up, ill make sure keep y’all updated! God Bless 🙂

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Posted in AWARENESS, Health, My Journey, Sickle Cell Anemia, Update

Living With Sickle Cell Anemia…

thumbnailSCDHey Everyone, And welcome to my world, basically a update from my two checkups. Not good updates, but hey I’m still alive, so I can’t complain. Right now Im waiting on phone call, on my blood work, lets just say I wasn’t happy about gettting stuck by a person who didnt know what they was doing. Bad enough my doctor was on vocation and I had lady who didnt know what she was talking about, so ummm she didnt order all the blood work I need’d. So I got a feeling when I do get a call, Its not going to be a good one. Makes you wonder why give me a appointment when the person I need to see when they on vocation? I don’t believe she like my attitude much, if you come in talking like you know everything I had while I was in hospital.. You already on my bad side. Sighs…

 

Primary doctor update didn’t go so well either, I had to wait awhile just to be seen… Add’d more poison to the list, for me to take. Since everything I eat, makes me feel uneasy, now I have ear infection on top of that. Im debating on taking more meds. My headaches have gotten worser, and trying to go to school with them is no joke. I dont want my meds up, because I would sleep all day,and I do enough sleeping as it is due to my health. So I believe I didn’t forget anything, if so I share in another post when I have another doctor appointment next month.