Posted in 2022, chronic illness, My Journey, My Life, pain, Sickle Cell Anemia, Sickle Cell Awareness, sickle cell disease, Update

Update

January update (2021)

Hello and Welcome to My World, thank you for the follows and likes. I know I have been slipping with my post and visiting. I’m trying y’all. I was sick a few weeks ago and so many times I wanted to pick my phone up and blog. Half the time I couldn’t even focus because of pain and meds. I do want y’all to see the good and bad side of my illness. But when I’m hurting so bad and sick they were staying on top of my pain. It started to get worse once they couldn’t find my blood type. Well not find it, it was stuck up in VA because of the snowstorm. My counts got low as 5.4. It’s a blessing they find blood in my state. Let me say this if you can donate blood, please do so. You are saving someone’s life. I understand if you can’t because of illness or whatever it may be. Anywho back to what I was saying. I had gone in because of chest pain and other areas hurting.  Never thought they going to keep me and I be in here damn near two weeks. They started looking for my blood soon as I got in to be on the safe side because I have antibodies and so I would have to wait and looked still had a wait. I was happy with my mom was able to visit because it would’ve been my ole man and they weren’t letting people visit months ago. She said I couldn’t understand you because the meds had me out of it. I have a praying mother, I was at peace because I knew everything was going to be alright. God had me. I was hooked up to heart monitors and this and that. That should’ve told me I was sick. It’s crazy how you think it’s something minor and ends up major. I had some good nurses and some nurses I wanted to smack because she didn’t know her job. It seem like every time I would move to go to the bathroom my port needle would come out. One time did it when I wasn’t plugged into anything. The next time it did it was when I was getting blood and messing my favorite gown up. I’m not used to needles coming out my port. It let me know whoever did it, didn’t do a good job. The nurse panicking and freaking out was making my anxiety go up. She was acting crazy than I was when it was happening to me. It’s when she lost her mind and want to yell and had clear my throat and give her a look.  Don’t do me know well get out of pocket when I’m sick. At end of the shift she didn’t listen to me about my ankles swelling and told the next nurse she says there swelling but threw not. Guess what my ankles swell a lot. I know my body.  I am thankful I didn’t get her again. I’m glad to be out but must admit not feeling my best. Was glad to have a doc appointment today. My heart rate has been high as 131 or even higher. Usually, go to ER, next thing I know I’m put in. It was all high today and so was my blood pressure, she had to retake it after I left. I didn’t want to get admitted over there, I will be too far from home and my mom is sick with covid and can’t come to see me even if I was close.  She gave me the flu swab negative and darn covid test, that be negative as well. I have wait two days because they were out of the rapid test. I have to get an x-ray tomorrow on my chest and hip. I bn dealing with back pain and when I got up my hipshot pain all way up and I was limping. I didn’t think it had been almost ten years. I’m still having some pain in my chest and back. We checking to make sure it’s not pneumonia. I didn’t want to be touched anymore today because I was hurting already. Hopefully tomorrow I will be up to another update because this is a long post. I’m going to get myself some rest until next time stay blessed and warm and safe. God bless

Posted in 2017, AWARENESS, fight, Health, My Journey, My Life, Sickle Cell Anemia, Sickle Cell Awareness

Sickle Cell Awareness


Today is World Sickle Cell Awareness Day. Every day is sickle cell awareness day to me. Go out and get tested, as well as go out donate blood of you can. God has truly blessed me to be still alive. Living with these disease has taught me so much about life and prayers. Today I’m not feeling my best, but trying stay calm and relax. I just wanted to come on here and share it with you’ll. Too many warriors have died in past few weeks and it truly breaks my heart.

Let’s spread the word, never know who live you may help. It means a lot 

Posted in Health

Transfusion

As of now, just about done receiving my blood and so ready to go home and rest while finishing my assignment. I have to be honest, I was starting to worry that they may not get my blood type in time. I shouldn’t have had such a doubt, because MY GOD IS IN CONTROL! 🙂  It went good, only took two tries to stick me when it came to the I.V part. I have realize that the nurses in the E.R are just downright rude, because when I’m on the floor I don’t get treated like I’m nothing. I actually had a nice nurse today. I have been up here since 10 this morning, didn’t really get started to about 11. I actually had a little nap during the procedure which I must say I needed it more than anything.  Time to go home and see the babies. I let you know how I feel about that later. lol  They always coming running to the door and hug both my legs. One on left side and the other on the right side, you can’t help but to love them right?

I’m so thankful for the one’s who go out and donate so I can have my transfusion, that truly a BLESSING, that so many people go out and donate blood to save someone life. If I could, I would, but I need all the blood that I can have in me. I Hope Everyone Is Having A Bless Friday! God Bless 🙂