Posted in 2014, AWARENESS, Health, My Journey, Sickle Cell Anemia, Sickle Cell Awareness, Update

Living With Sickle Cell Anemia

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Hey and welcome to my world, I have had a rough weekend. I don’t even know where to start. I’m so ready to throw in towel, seem some doctors don’t take us meaning people with sickle cell serious. Everything seem come back fine with my sc. Soon as I got home guess who couldn’t walk, hurt breathe. When I move I cried, yep if you said me you so darn smart. God Bless You! I even tried go back to er, let me tell you I didn’t want go. I just wanted to well we ain’t going go there.  By end of night I was worse then night before. Went to another hospital,  the first test they did was flu test,  since fever was 101.3. Came back positive for h1n1. I was shock as he’ll to be honest. Nope don’t get shot, haven’t had it since I was teen got shot n was bless with flu. When I’m out,  I carry Sanitizer n other stuff to help not catch nasty germs. That hospital said they didn’t keep flu patients, I was throwed by that. I had be tough n get shots,  so wasn’t please.  I was bless with port for a reason. I been in bed all weekend,  at doctor office. I start classes again, last year. When will it end, must say not happy See my doctor since didn’t catch it. Sighs. I hope to come back with another update soon, pain taking over,  hope I made sense. I pray you all is well n Ty for joining my journey. God Bless

Today mark my surgery anniversary. GOD IS TRULY GOOD. 😄

Posted in 2014, God, Health, My Journey, Update

Update

blogHey Everyone, and welcome to my world.  I haven’t been feeling my best but been trying to do what I can, as of right now. I have made some visit to e.r since my doctor have been on vocation. lets just say them visits’ didn’t go so well. I got sent home every time feeling worse then before. First time I went, had rude nurse practiner… It took God him self for me to hold my peace and not lose it.  Next time to had cool doctor, he explain everything to me on dis visit. Since my blood count looks fine, didn’t see a reason to keep me. He also told me that I know ya’ll can have pain even if blood count looks fine and retic. He tried to do everything he could, but since obamacare everything seems to be difficult to do. Hmm always something. Must admit its getting crazy for me as a person with chronic pain, if meds at home not doing its job. Taking meds and drinking  plenty fluids (water). I guess it a roll into E.R on my death bed then I get treated the proper way. Other then that my plumbing problem is almost taking care of that’s why I’m posting from home. I’m dealing with my nagging headaches, so it’s making it harder for me to post and read like I want 2. So do bare with me. I hope everyone is enjoying there summer, I hate the summer, its hella hot.. And not good for me. Who wants to stay in the house all the time? Looks around not me…  I do pray all is well with each and everyone of you all. So thankful for all who have join my journey. I now I have been slipping big time. So do bare with me, I have been writing, I just need to type it all up so I can share it with  you all.

 

 

I haven’t did update on the lil one’s in awhile. They getting so big and tall. Lil lady is 6 now and Mr. Man is 4. School will be starting soon for lil lady and of course Mr. Man will be going back to Daycare. I must say so glad to be home to enjoy peace and quiet. Maybe my headache will stop. I’m praying it does.. They grow up so fast right? Lil lady have become so freaking sassy its driving me crazy. Nast lil attitude for someone so young. Ha, I think I maybe rubbing off on her with attitude part. Ha. Mr. Man have one as well, and his tantrum is grr… That’s all I’m saying. Nope I’m not missing them whatsoever on this point. On flip side, the MOM who had them finally came home from prison. I must say I haven’t change my mind about her. I need proof that she done change and want to be in her kids life. One visit from my lil lady, she done got worse. Attitude … I already not liking it, but hey I’m not finna stress myself about it.. Another quick way to put in hospital looking crazy… Believe that’s enough update for now…

Posted in 2014, AWARENESS, My Journey, Sickle Cell Anemia, Update

Living With Sickle Cell Anemia

thumbnailSCDHello and Welcome to my World. I done had two different check ups since I been home. I have one more towards the end of the month. I’m still working on changing primary doctors. I can’t say I’m surprise that the hospital I been going to don’t do business with some doctors here. I must say I met a lot of nurses that work with the hospital I used to go to and know my doctor very well. Like I told him since you wouldn’t admit me the first time, I had to go to another hospital. I refuse to be in pain, and you suppose to be my primary doctor. I’m still waiting  on my labs from last week and to see how my chest x-ray looks. Umm I did all this last Thursday, and still haven’t heard crap. I haven’t had my steroids since I got out of hospital last week. You would think he would let me know something. I done call office a few times. I saw my blood doctor today, and got good report. My blood count is good, still holding its on. I couldn’t be more happy. I’m dealing with headaches once again, seems like there getting worse every since I got sick last time. I’m praying I don’t see inside hospital for nothing, but I know that’s not going to happen. I went last week to get xray and stuck. I believe nurses hate to see me coming. I give them one chance to stick me, hello I have port, put it to use. But the last two different people from both check ups, did good.

Posted in 2014, AWARENESS, God, Health, My Journey, Sickle Cell Anemia, Update

Day 1-3, Living With Sickle Cell Anemia

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Hey  and Welcome to my World! Im in hospital once again, idk whats going on with me! My fight is getting the best of me! So many times I thought to give up! I know God has a purpose for me! I woke up Friday with terrible chest and back pain. I couldn’t hardly talk are breathe. My main concern was I hope im not having heart attack. I did get scare with my port, and I was praying it was okay. The nurse had put the tape to tightly on my port! It was on fire, for the one’s that know im hard person to stick! They had unhook me from fluids, and thought about accessing it again. Good news, they didnt. Even better news its feeling much better 🙂 Blood Count is holding its on, which is extremely good! I don’t plan on receiving blood! The pain is getting much better , which is good since im tired of hospitals! Bless with good nurses and doctors once again. Until next time! I pray all is well with each and everyone of you all 🙂

Posted in AWARENESS, Health, My Journey, School, Sickle Cell Anemia

Living With Sickle Cell Anemia…

thumbnailSCDI’m so thankful for all the prayers and comments and even the likes, truly touch my heart. I had been sick for over a month,and trying to stay strong while in school, but got to the point I just couldn’t take it anymore. Ended up at the E.R Monday afternoon,let me tell you, that was the longest time I ever had to wait to be seen. If I was in the mood to  write a story on E.R, that would be one of them, with so many lovely and not so lovely stories to share with you all around the world. Lets just say, I didn’t get seen to about 7:30 that night, yep you read correctly and yes I type correctly. I was not a happy person, let me tell you. I got admitted but didn’t get put on the floor to the next morning. I was blessed with kind doctor and lovely nurses, and some cute male nurses if I do say so myself 🙂 I had transfusion, only one unit, which I’m thankful for. My doctor is smart now, he starts ahead of time to look for my blood. Whew, because you know I be still in their waiting, so im home, with the love one’s. I really wasn’t in the mood to post from hospital. I basically just got some rest, because I havent been sleeping since I havent been feeling good. I was my first hospital stay since the new year, so that’s truly a Blessings. If you was with me last year, you know how much that means to me and where I’m coming from. Right now, I’m doing some catch up with my studies, so hopefully soon as I’m caught up or when the term is over I can give blogging some more of my attention. I have read all the comments, just haven’t had time to approve them. I can honestly say my hemoglobin was good before I got put in but my retic count wasn’t because I was in so much pain, it end up dropping and he though I would need 2 units of blood. I know I’m everywhere with this post, sorry about that. I try to do another one real soon to keep you all updated. I do have doctor appointed in a few days, to see how everything going on. I pray all is well with each and every one of you. God Bless 🙂

Posted in Health, My Journey, Sickle Cell Anemia

Day 1-3,Living With Sickle Cell Anemia

I have being in hospital ever since Monday, I haven’t been feeling my best since the weekend and the pain got worse. I actually had doctor appointment Tuesday and was going to wait it out, but since I couldn’t get in touch with my ole primary doctor so I can get referral to go to my new one. I decided to cancel and go to E.R. Lets just say my lab came back fast because it was consider critical low. I’m not feeling my best still. I have to get transfusion. It actually was 6.9 when I arrive then that night it drop. Its taking longer this time for my blood, as you all know its hard to find my blood type. I haven’t been feeling my best, but decided to go head and share with each and every one of you. I’m so touch by all your comments and prayers. I do have some great nurses and doctors, that taking good care of me. I’ll try to keep you all updated from here on out. I do hope everyone is doing good. God Bless 🙂

Posted in AWARENESS, Health, My Journey, Sickle Cell Anemia

Recovering/Information On Disease

I seem to be stuck with cold ever since I got out the hospital and can’t get rid of it for some odd reason. I never had this problem before getting over cold. The New year is almost here and have two new doctors to see coming up in a few weeks. One is for my headaches I was getting all the time. I don’t get them as much right now, which is a good thing. But after doing more searching about my disease and learning about why I could be having headaches everyday. I learn something that  I didn’t know that it could be cause of a tumor. Since I’m the only one in my house hold with my illness, its good for me to study on it and learn as much as possible. You do know with seen the different doctors I do have, they never mention anything about me having tumors. I don’t know if that a good thing or bad thing, part of me make me think they don’t believe it could be that serious for me and then other is they probably know I can’t handle no more awful news. Also the other doctor appointment is about why I have so many antibodies in my body. Since its hard to find my blood type, I like to say thank you to each and every one of you whose been praying for me and still praying for me and who donates blood or know someone who does. Last time it didn’t take long to find my blood type. I was so happy! I was just in the hospital that long because of a slow ignorant doctor. Seem like he don’t know how to talk to a lot of people’s, and think people s have to take his lip and attitude. Thats a negative! Hey my mouth is working process.  I had a good  Christmas, wasn’t down in my body or stuck in hospital, did have a doctor appointment before Christmas. It went sorta good and sorta not. Yay for getting took off one medicine and boo for getting put on a new one that suppose to be better for my headaches. If you don’t take medication on every day basic, you or truly bless, and don’t ever take it for granted.  If some had read up on my disease because I havent made it back to do all that good stuff. That post should be up sometimes this week. Different ones with my disease can take the medicine to help them have less crisis, but to be honest I never really needed it before I got put on it when I was younger and it didn’t;t agree with me. I almost died in 06, so that’s when I got introduce hydroxyurea.  I usually take Folic Acid, that been working for me every sense well shoo forever. Seem like I’m everywhere with my post today. I’m pretty sure more to come this week, hate to bore all of yall in one post. 🙂

 

 

I do love all my followers, you have truly been a BLESSING to me on my JOURNEY, can’t wait to see how 2012 goes for us. Many Blessings to each and every one of you, like to welcome all my new followers, and say glad to have you on my JOURNEY, can’t wait to get to know each and every one of you as the year goes out and as the new year comes in. God truly knows what he doing when he seen certain peoples in your life that you never expect to make a mark on you.

Posted in family, poem, Poetry

Fighting to Live

Fighting to live

She holding on for her family

The doctors have gave up on her

She trying to live for her child

She done lost two already,

It was a toll on her

Living for her daughter

It’s time for her to grow up

Fighting to live

Staying strong for her children’s

Laying in hospital room

Wanting to go home and sleep

Away.

Return to the same place one more

Time

Losing blood

Fighting to live

Children stand strong for your mother

She needs to know

Ya’ll going to be okay

Don’t fight or argue

Come together as one

Fighting to live

A mother on her death bed

Is fighting to live for her daughter

Grandma

I saw you get hit hard with death of your

Two oldest daughters

I couldn’t bare see you when

I was down the hall from you while

Recovering from having crisis

I pray you can make it to the New Year

Fighting to live

11/27/11

PoeticJourney

 

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As some of you may know I lost my grandmother this morning, the poem was writing last night and it’s not finish.  I actually wrote two today and should have them up sometime today. Thank Everyone who have been leaving me comments of comfort during my time. God Bless Each And Every one Of You!

Posted in School, Update

Update

I’m home, and doing much better than I was. I have little pain every now and then not as bad as it was before I went into the hospital. I’m so glad to be home.   Since I’m home as you can see I want mention days etc as if I was still in the hospital. I don’t want ya’ll thinking I want pity or whatnot. I suppose to be enjoying my weeks off from school, but I have two tests to make up and my final of my Research Paper Due. I do not like the D’s in my English and Psychology class. That’s what zeros’ get you.  So I have to make a doctor appointment with my hemoglobin doctor, I will be making a post about that very shortly so I want go into much detail about it right now. But back in September after I got out the hospital and went to see him I was happy to get good news about not having to see him to the New Year. As we  all know the New Year isn’t here quite yet, so little o’ me have to see him. I see him Friday, so I will have post letting you all know how it go. I hope it goes well, I’m praying it does. I’m asking for prayers, if ya’ll don’t mind praying for me some more. If not I do understand. Oh yea if ya’ll haven’t figure out from my post I hate doctors and hospitals as well as needles and anything to do with it. I only go see my doctor or even the hospital meaning E.R if I’m feeling bad. Yea I know that’s not good in my case. Let me tell ya’ll a secret I don’t like getting stuck, I hate needles. I hate when people don’t know what they doing. I have memories of turning blue, black because they hurt me so bad because they were so careless. I remember crying so bad because I was in so much pain I had young guy come in the room who was also in the hospital and try to calm me down, Let me tell you something it didn’t work. I don’t trust peoples who have needles in their hands. I ask tons of questions. I have only a few nurses I will let touch me and not mess my face up. I’m supposed to be updating ya’ll on how I’m doing and I’m telling ya’ll my experience I see what my adopted daughter means I need to learn to stay on subject. Loll! Well I felt like it was the only chance I would want to tell the story so I had to share it with ya’ll. As I was saying at the beginning of my post doing much better just have the headaches which could be the death of me no joke. They or in painful and the medication they have me on doesn’t do anything for me.  I enjoy the good days or hours while I can

Posted in poem, Poetry, Sickle Cell Anemia

Pain

In my body
Here & there
From head & toe
One minute its
Gone & Hello
Its back
Tears of pain
Needles, doctors
Nurses
So much pain
Someone dying in the
Room next door
A young lady giving birth
On the second floor
Tears of joy
So much pain
Around me

11/10/11
Poeticjourney

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