Posted in AWARENESS, God, Health, Love, My Journey, Sickle Cell Anemia, Update

Day 8, Living With Sickle Cell Anemia

I believe I start this post with some good news before I start it with negative news for my dear followers. I got the good news to come home today. I find out just how sick I truly was. I knew I was sick when I find out about my blood count was 6.9 then drop to 6 the same night. I find out had fluid in my lungs and that I had touch of pneumonia. I’m still not happy about my blood count, not as high as I would like it to be, but I’m praying it be just fine before my check ups in a few weeks. I think its in a few weeks. So much on my mind. Everythingelse look good, so it was good for me to go home. Blood count was going up, it was 7.8, and I was praying and hoping it would be 8. something, but it ended up dropping to 7.6. My doctor had the weekend off, but find out Monday that he was looking over my chart and x-ray from home. Now that a man that’s dedicated to his job and patients. I wasn’t crazy about the doctor that step in for him over the weekend, he didn’t say much like my doctor does. He explains everything.  I don’t want to make this post long.  I wonder since I got so sick so soon, that much mean the month of MAY is going to be good month. I say good month because its my BIRTHDAY! A few years I be tapping 30! WOW! Is all I can say.I’m so touch and thankful for all my followers that have been with me for the long run and the new one’s I have met on the way. I haven’t forgotten about you all, it’s just my health and school has been keeping me busy and haven’t got the chance to visit and comment like I would love.  You all have been a BLESSING to me on MY JOURNEY! I do hope all is well with each and every one of you! Sending many BLESSINGS TO EACH AND EVERYONE OF YOU! God Bless 🙂

 

GOD HAS TRULY BEEN GOOD TO ME, HE NEVER LEFT MY SIDE, EVEN WHEN I WANTED TO THROW IN THE TOWEL! THANK GOD FOR HIS LOVE & MERCY

 

I have slip on been more of ADVOCATE for my illness, I hope soon as I get done with this semester I be better at bringing more awareness to Sickle Cell Anemia!

Posted in Faith, God, Health, My Journey, poem, Poetry, School, Sickle Cell Anemia, Update

My Story

Has taking me places I never thought it would be going.

Only honesty can get me out of this right now

So to my kind followers

Lately I have been losing

courage to share my JOURNEY

with you all.

It seem like I’m ready to throw

in the towel and ready to give up

All I want to do is cry,scream,yell

and hide under the covers in

the dark!

This is My story

2/22/12

PoeticJourney

I was going to put it in a poem, but I decided to just make it in a post to put all my thoughts in it! I hope you all brought your cup o joe and something to snack on as I share a little or should I say a lot with you. As of lately I have been in pain every single day since las Thursday! I enjoyed the few days of no pain.  Seems my blood count is looking good so they wont keep me. Sighs! I done read stories of other sickle-cell patients that in pain every day of they lives, but honestly that have never been me. My heart always went out to them, and broke. Yesterday I had one of my weak moments and just broke down and cried out and just wanted to be out of my misery. I know GOD got a purpose for me, I know he’ll take me out this WORLD when his ready! I’m just glad my blood count is looking good, but not happy about the pain I’m having and wish and praying that it will all go away. My doctor appointment didn’t go well if you all is wondering. His worry and I’m worry, his really want to get me into seen a sickle-cell doctor ASAP! So we can see what’s really going on with me. I feel like his giving up, and I know I wanted to give up. I just don’t want to since no one giving up on me or I get that vibe of them doing that. But I do understand if he can’t do anything for me I should see a doctor that can see whats really going on with me. I have good and bad moments. I have to tell you, I’m actually taking my time with this post. My classes have started again today, I thought I had another week but I do need something to take my mind off my pain. I even started playing Farmville on Facebook again, to pass time. I should read one of my novels I recently bought. I have done a lot of catching up on different blogs. Okay back to the point of my blog. I don’t want you all thinking I want pity, because that not what I’m about.  I never imagine MY JOURNEY would be rollercoaster, but GOD knew, so I’m going along with it! Some days I might not have much to share and some days I might have a lot to share. I actually have a class I have to retake because of being so sick last semester. Sucks, but for some odd reason I rather take it over then just make up the stuff I haven’t done.  After this semester I’ll be off to the FALL. Hopefully I have my illness in check and you all wont hear about me been in the hospital so much. I seem to be everywhere in this post once again. Lastnight I got so upset with the nurse, but she explain herself to me afterwards. I just want people to understand I HATE HOSPITAL/DOCTOR OFFICE/. I had a few good nurses last night, that took real good care of me. The nurse explain to me that I have so much going for me and she wants to know whats going on with me because she is use to take care of sickle-cell patients and she know I never use to come in as much as I have been coming in. I don’t blame her for thinking like that, but its a way to show someone you care so they can see where you coming from. I hope that made sense. Now I see what many sickle-cell patients go through when people think that addicted because they come to the hospital so often, hell if that was the case I would just go drop off all my prescription I have in my room and get them fill. I’m allerged to pretty much everything, so only can take one thing. Hmmm, and they keep giving me darn prescription for stuff I don’t like. Yes, I’m serious. Anyways away from that nonsense.  I’m so thankful for the encouragement and prayers, truly mean so much to me. You all just don’t know how much it keeps me going at times. 🙂 I know I’m not alone on this JOURNEY! I will not give up the fight, I’m trying to be more of ADVOCATE, something I truly always wanted to be. I know I keep tell myself I’ll do post explain what my illness is, do bare with me. I haven’t forgotten.

I haven’t lost my FAITH, not letting the devil get the best of me either. I know we all go through different things in life. I see my illness has been one of them as of right now. No limits to what GOD can do for me and any of us! God Bless 🙂

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Posted in AWARENESS, My Journey, Sickle Cell Anemia

Awareness

Am I wrong for wanting more Awareness for Sickle Cell Disease? I was recently talking to someone about my illness and she was like I didn’t know you had it and that she didn’t know much about it but wanted to know more about it. How can I spread the word about it and not get to emotional about not having much Awareness for my disease? I want to be Advocate, to be one that mean I would have to open up more about who I Am, and How I am living and dealing with it for over 20years? I didn’t know about we had a month of Awareness, to have a month but not really hear much about it bothers me. But someone had told me they heard about it and saw a few things as well.

To live everyday and to be in pain a majority of your life sometimes getting to the point and just being  unbearable. I smile on days I wanted to cry and just wish I wasn’t here anymore, but I knew it wasn’t my time to go yet. I know I haven’t blog much about my illness. I have been doing research on it for my English paper, so I have been learning new stuff each and every day. When I decide to spread more word on the issue I don’t want people  thinking I don’t know what I’m talking about. I know I haven’t made it back to explaining what it is yet.

You’ll see more on these topic of Awareness, it’s time for a change and I’m on my way of making it happen in due time. Right now days have been hard due to  my headaches getting the best of me at times.

GOD BLESS,

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POETIC 

Posted in My Journey, Sickle Cell Anemia

Living with Sickle Cell Anemia

Today isnt a good day. Finally cold weather is setting in, and
feeling it in my body! I havent spoke much on my illness because I have being doing some serious research for my paper and learning more about it myself! A few more weeks of school and a little break. Headaches getting worse, so havent being able to focus on my assingment like I want. I know I still have the entry to explain it, sad say I lose a lot of my work on my pc. I want to be ADVOCATE for SCD. So much to do in so little time. Im battling with myself right now, because I want to do so much or should I say Im doing to much! God give me strength!

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