Category: Sickle Cell Anemia

Posted in Health, Sickle Cell Anemia

Day 6, Living With Sickle Cell Anemia

Posted on by poeticjourney

Good Morning, Another Lovely Day and still stuck in the hospital. As of right now, I don’t know when I’m going home. I haven’t seen the doctor today or yesterday. I thought I would have a doctor that would  be on call for the doctor I had during the week. I suppose I was wrong. I had to change rooms yesterday.  I have a bigger room, which I’m loving I must admit. I had some more old nurses.  I find out this morning, little lady doesn’t want to talk to me she wants to come and see me. I hope that explains why she hasn’t been taking my calls. Oh yea I was regretting moving to the room I have because of the person next door. I believe she is older woman. She keeps crying out help her help her. I didn’t know what was going on with her. I do have some nice nurses, so thats good. I do hope to receive some good news tomorrow when I do see my doctor. I hope my blood count be still on point since the last time it got check was two days ago. This time around I haven’t really have the strength to post or comment. I know once I’m  out the hospital I have a lot of reading to catch up on. Well just saw the doctor, will be getting some blood work done to see how my blood looking. I hope to share some good news on the next post with you all. For some odd reason, my blood pressure isn’t looking good for me. It has been very low . I’m still having some pain, so still have to ask for pain medicine so I can get some sleep. If you wondering how long I been working on this post, let me tell you all freaking day! lol!  I just got some sad news 😦 my count his drop some and I hope it doesn’t drop any tonight. It hasn’t drop enough to get enough unit but its not 9 anymore. I don’t know how I feel about all this. I believe I’ll get me some rest, since I’m not feeling my best. I do hope each and everyone of you is having a Bless Sunday! God Bless 🙂

P.S Thank you all for your prayers and kind words, truly means a lot to me! God Bless 🙂

Posted in Health, My Journey, Sickle Cell Anemia

Day 5,Living With Sickle Cell Anemia

Posted on by poeticjourney

Good Afternoon, Had rough night! I’m getting use to the port, actually started using it yesterday. So happy that I don’t have to get stuck anymore! YAY! Had accident with one of the nurses last night, I thought I had lost my pc. She knock my poor baby off the table and hit the hard floor. So happy she didn’t break because she not even two months ole yet. The nurse was like I’m not worry about buying you another one, I can do that. I just don’t want you losing your school work.  So I receive a unit of blood last night, because they were worry about it dropping some more. I don’t know when I’m going home just yet. I’m still having some pain, which isn’t a good thing. 🙂 I did receive good news my count went up with the one unit. I was worry that it wouldn’t go up much since last time it didn’t move much. Sad to say little lady still not taking my calls. I don’t know how I feel about that. I don’t know if she think I turn my back on her and not coming back or she just holding a grudge on me. I can’t wait to get home so I can have a serious talking with her. I enjoyed hearing my little man try to talk while on the phone. More like whine because his uncle took his fork from him. I can’t believe I’m missing them this much. 😦  I know I say I’m thankful all the time for all the encouraging words and prayers from you all. It truly does mean a lot to me. I shall keep you all updated on when I go home and whatnot. I know I’m off to the end of the month with school.  I must admit I’m excited about that. God Bless 🙂

Posted in Health, My Journey, Sickle Cell Anemia

Day 4, Living With Sickle Cell Anemia

Posted on by poeticjourney

Good Morning,Finally decided to make it over to posting and reading comments. I’m so touch by every single one of you.  I’m still here in the hospital 😦 I had a rough night last night, and my blood count drop. Sighs!  It was 6.9 this morning, they want to make sure its one thing or another before they give me transfusion. I wasn’t happy to hear it drop again. I was hoping to have more good news to share with y’all today. I guess I will try to tempt some make up homework and get it in sometime today. I have been putting it off long enough. I’m ready to go home so I can have some real food. as you can see I don’t have much to talk about today. I do have some wonderful nurses today. 🙂 YAY! I hope each and every one of you have a Bless Friday! God Bless 🙂

Posted in AWARENESS, Health, My Journey, Sickle Cell Anemia, Update

Day 3, Quick Update

Posted on by poeticjourney

I’m back to share how it all went down today. OMG im so sore where I got my port at so its hurts to really move and to type, so this will be short post. I haven’t had the chance to make it to my comments so do bare with me. I’m not ignoring you. I have a nice nurse tonight, his name is Alex. His a funny guy 🙂 I was so glad to have something to drink, I can’t even tell you what all I had to drink. Of course I was excited about eating as well. I finish my subway sandwich it was good. I’m so thankful for all your prayers and comments. They truly mean a lot to me. Oh yea a little good news is I find out a few hours ago my blood count is going back up! YAY! still low but not low as it was the other day. Something tells me I’m forgetting something, if that the case I make sure to mention it tomorrow lord will. Many Blessings 2 each and every one of you! 🙂 Oh yea I must admit I have been getting much sleep since I been back from surgery. I got to meet the doctor earlier today before it came down to have the surgery, such a nice man. And plenty of nice nurses as well. 🙂

Posted in AWARENESS, Health, My Journey, Sickle Cell Anemia

Day 3,Living With Sickle Cell Anemia

Posted on by poeticjourney

Good Morning, Another Day here in the evil place. I might make two post today. I’m not happy to be honest. I can’t eat or drink to I get my port. YAY for the port, boo that I can’t have anything to eat or drink. We have subway here at the hospital so it’s not like I would eat the hospital food. I would love a cup of coffee right now. I had another lovely nurse last night she went and go my sub for me last night. 🙂 I’m still waiting to get my transfusion, I need two units instead of one. I believe they have one right now, but not the other one. Sighs! I’m a little nerves about the port, but I need it, because I don’t know how much more I can take getting stick. I saw my little lady yesterday, she didn’t want to leave me. I was so happy to see her. I told her I would call her and check on her, but I feel bad since I was in so much pain yesterday. I had forgotten to call my little lady. She didn’t want to talk to me today. I can’t blame her. I saw my doctor yesterday. I seem to have to start seen a sickle-cell doctor since I’m having more crisis then every before. Oh yea lucky me I have to add another pill to my collection. Sighs! If you all don’t know I hate taking medication. I can understand take them every now and then when you have pain, but to take them so you wont have pain is another story. Well that all for now, I do hope each and every one of you is having a lovely day.

 

 

P.s I’m so thankful for all the prayers and lovely comments, they truly help my day go by. God Bless:)

Posted in Health, My Journey, Sickle Cell Anemia

Day 2,Living With Sickle Cell Anemia

Posted on by poeticjourney

Good Morning, I had rough night last night dealing with my I.V, had to get a new one. I would get a rude nurse this morning to put it in. I told her to take it out and she ask a stupid question WHY? or you freaking kidding me. Obviously it hurt. I had to but my tongue and let me tell you I had some words to say to be honest. Today I have a lovely nurse I done had before. She is so nice. She heard about the rude nurse, and I don’t know how she heard about her because I didn’t say nothing to anyone. I was in too much pain, to let the nurse I had known last night. I didn’t get the nurse name who came and put my I.V in, my nurse says she don’t play that. See what I mean a good nurse I have. Okay to the bad news, my count drop to 7.3, so you all know what that mean right? I need transfusion. sighs. I know another one. I’m still hurting today, not feeling my best, but wanted to share some of my good and bad news with you today, since last night was sort of short because of the pain. I’m so thankful for all your prayers and encouraging words. Truly touch my heart and head me all teary eyes. I shall keep you all posted, so until next time. You all have a Bless & Glorious Day!

 

p.s Almost forgot about the doctor, I do have a nice one this time around as well. Someone I never had before! Actually saw him when I got on the floor lastnight and that was around 11 soemthing. I told him I’m use to seen the doctor in the morning, he said he had nothing better to do. I had to laugh at them, sounds like a man thats about his business! We shall see how it goes throughout my stay here.

Posted in Sickle Cell Anemia

Day 1, Living With Sickle Cell Anemia

Posted on by poeticjourney

Hello and welcome to another day with me as I lay in bed in this evil place 🙂 I have been in pain all day, so as I posted last night I would be going to hospital. I’m not even going to tell you how long I been here and I just recently got admitted about hour ago. Yes, they are slow and so they say have been hella hectic. I know I’ll  fill you in some more in the morning. I just wanted to let you all know whats going on with me since I haven’t posted or commenting anytime today. I’m not ignoring you, just pretty much been hurting and being here pretty much today. I do hope each and everyone of you or Bless Night.

 

 

p.s Thabk for all the kind comments, prayers truly touch my headt.

Posted in AWARENESS, My Journey, Sickle Cell Anemia

Living With Sickle Cell Anemia

Posted on by poeticjourney

Where should I begin, I haven’t been feeling good ever since last week. I had a little trip to E.R they didn’t keep me because well my count wasn’t low enough! Go figure right? Shrugs!  I started feeling better, but you know the saying calm before the storm right? Early Sunday Morning, it hit me hard and like a ton of bricks. I felt it in my legs,arms,back,etc. I smile when I wanted to cry, took plenty hot showers and bath just to feel a little relief. I had forgotten about bengay, it came to me in dream last night. I’m trying to hold out going back to hospital because of school, semester ends tomorrow. I have to be honest, I haven’t done any homework, every time I tried the pain go bad, sounds bad or like I have excuse not to finish my homework. I’m so ashamed, but if you ever felt bad you know exactly what I’m talking about. I’m so thankful for all the prayers and encouraging words, truly have touch me. I have one of the worse headaches, i don’t know how long I done had it. I’m just glad my back isn’t hurting, because it was painful to move or get up once I did sit down. I could go on and on with this post, but I do have to tempt to get some more homework done, but I do know for a fact if I’m not feeling better in the morning, I’ll be at the hospital dreading it all!  I must admit this is the worst I have felt since going into crisis and sharing with you all lovely people. I believe when I got introduce to the ideal of blogging about my illness,I was just starting out really to blogging here. It was bad then, and it’s not pretty now. So on that note, I hope everyone is having a lovely and bless night! God Bless 🙂

Posted in My Journey, Sickle Cell Anemia, Update

Doctor Appointment

Posted on by poeticjourney

Good Afternoon,

and welcome to my JOURNEY, I know I mention in my Word to the Wise, that had doctor appointment. I’m here to let you know how it went. It went sort of good! YAY! I mention to him, that I’m ready to go for port, because hey your girl is getting tired of getting stick when it comes to things like that. So they or checking into information before I go in for it. I’m little nervous but it’s good I won’t feel it when the time comes, and  its a lot easy on my body. I have so many scars on my arms when it comes to sticking me. I actually have a poem call Scars,that talks about it. http://poeticjourney251.com/2011/12/14/scars/ Make sure you click the link to read it. The doctor ask me do I believe I need transfusion, since it was still low. Tell me how come my doctor thinks its low when its 8,but the fools at the E.R don’t. That be another story  for another time. Well been home for a while actually waking up from a much needed nap. I got a call saying I need transfusion, its starting to drop once again.  I must say I’m hoping that since  I’m getting transfusion now, that I wont have to see inside hospital month coming up. I have to pray about it and wouldn’t mind if you all prayed as well. 🙂 So I have to go in later today so they can stick me once again. Sighs, I do pray and hope they have good luck finding a vein.  Since I was in the hospital a few weeks ago, someone stuck me in not so good place and have knot to show for it. If you new to joining my JOURNEY, I have Sickle Cell Anemia. They want to me to get the transfusion tomorrow, but I know for a fact that I’m not going to enjoy this.  I have to go through a lot before I can actually get the transfusion, that my only main problem right now. Sighs, moving on time to throw all my worries in my school work. I’ll shall keep you all posted on what happen when it happen. 🙂

 

 

I’m so thankful for all the prayers from each and every one of you! Truly means a lot to me. 🙂 I do hope each and every one of you having a Bless Day

Posted in God, Health, My Journey, poem, Poetry, Sickle Cell Anemia

My Pain

Posted on by poeticjourney

My pain,

you can’t see

Do they not

understand,

I hurt in

the same way?

Why must I suffer

because of stupidity

I know they thinking

nothing wrong, she

here for the meds.

The pain

I have, they should

walk a mile

in my shoes

Are we not the

same?

Look pass my outer

Laying here

tossing & turning

Praying

The pain

I have is driving me

crazy

Do they not understand

I hate this place

Don’t I tense up

every time a needle

is mention.

I know they got

to be tired of seen me

trust it goes both ways.

My pain

they don’t understand

nor believes.

Oh your blood count is good

and everything else is fine

Lets send her home.

I swear they love seen

me coming back

to this EVIL PLACE

I wish they could

understand and treat me

with RESPECT..

GOD

I know you in Control

and you know my pain

Praise God

for a doctor

who understands,

a friend

who always there

a nurse

who never forsake me

Praise GOD

he knows My Pain

1/19/12

PoeticJourney

 

I’m so thankful for everyone kind and encouraging words, and letting me know you still praying for me. Yesterday morning I woke up around 12 and my whole body was hurting, I couldn’t move. I got up and fell back down on my bed. Took me turning and tossing in my bed for like 4 hrs to get back right so I could sleep. I still wasnt feeling my best when I did my post yesterday. The poem is inspired about what happen and etc…