Category: AWARENESS

Posted in AWARENESS, Health, My Journey, Sickle Cell Anemia, Update

Quiet

Posted on by poeticjourney

Today hasn’t been good day! I’m avoiding going to E.R, because I’m tired of them thinking nothing wrong because my blood work looks good! Feels like a few years ago back in 06. I almost died because they wouldn’t keep me! So if I’m quiet and you don’t hear much from me that’s why! I do hope everyone is having a good weekend! It done got cold once again which I’m not happy about! Sighs! Thank you all for the prayers and kind words truly means a lot! I’m praying I start feeling better soon! God Bless & Good Night 🙂

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Posted in AWARENESS, God, Health, My Journey, Sickle Cell Anemia, Update

Living With Sickle Cell Anemia

Posted on by poeticjourney

Hello and Welcome to my place, if you new to my JOURNEY, you may not know I just recently got out of the hospital for been in there for about a week! sighs! If you been on my JOURNEY, you all know the routine and thank you all for staying with me for the long ride. I never imagine it would be so bumpy. I have never seen the inside of hospital as much as I have this year. I suppose it’s the first time for everything. Well not just this year, since the year just came in. lol. I have never seen the inside of hospital every month. Usually just once or twice and sometimes none. I truly miss the times I didn’t see inside the hospital. I’m glad I finally got my port, on my last stay, so I don’t have to worry about  getting stuck so much when I do have to visit doctor office as well as the hospital. I’m hard person to stick. Every since I been out the hospital I haven’t been feeling my best. I have been in pain ever since. I find out yesterday I’m actually in the process of having a crisis, but were trying to do everything to prevent it before it get out of hand. I’m happy to let you all know, my blood count is looking good. YAY! I hope it still looks good,when it comes to check up or if I have to return to hospital because for some odd reason I can’t get my pain under control. I must admit did have nice looking doctor yesterday with the prettiest darkest blue eye’s. I’m a sucker for them. Okay you getting to know me a little bit more 🙂  On side note, my little lady has been sick as well with ear infection, she is starting to feel a little bit better. THANK GOD! If it was anything besides ear ache, I couldn’t be around her. She been saying, but I love you. 🙂 Okay back to the point of my post. I haven’t been feeling my best, right now I’m still not feeling the best that I should be feeling. I’m actually in the process of watching a movie with my little lady.  I just hope my blood count stay the same, since it was looking good, but long as I’m hurting that means it got plenty time to betray me. 😦 I’m praying it stay up and going strong. I’m so thankful for the one’s who or still praying for me and holding me in their thoughts. It means a lot to me! I must admit, the day I came home from hospital I did tell the doctor I wanted to come home even if I was in pain, but to be honest, I had started to feel better. The weather has been a little crazy here.

Posted in AWARENESS, Health, My Journey, Sickle Cell Anemia, Update

Day 3, Quick Update

Posted on by poeticjourney

I’m back to share how it all went down today. OMG im so sore where I got my port at so its hurts to really move and to type, so this will be short post. I haven’t had the chance to make it to my comments so do bare with me. I’m not ignoring you. I have a nice nurse tonight, his name is Alex. His a funny guy 🙂 I was so glad to have something to drink, I can’t even tell you what all I had to drink. Of course I was excited about eating as well. I finish my subway sandwich it was good. I’m so thankful for all your prayers and comments. They truly mean a lot to me. Oh yea a little good news is I find out a few hours ago my blood count is going back up! YAY! still low but not low as it was the other day. Something tells me I’m forgetting something, if that the case I make sure to mention it tomorrow lord will. Many Blessings 2 each and every one of you! 🙂 Oh yea I must admit I have been getting much sleep since I been back from surgery. I got to meet the doctor earlier today before it came down to have the surgery, such a nice man. And plenty of nice nurses as well. 🙂

Posted in AWARENESS, Health, My Journey, Sickle Cell Anemia

Day 3,Living With Sickle Cell Anemia

Posted on by poeticjourney

Good Morning, Another Day here in the evil place. I might make two post today. I’m not happy to be honest. I can’t eat or drink to I get my port. YAY for the port, boo that I can’t have anything to eat or drink. We have subway here at the hospital so it’s not like I would eat the hospital food. I would love a cup of coffee right now. I had another lovely nurse last night she went and go my sub for me last night. 🙂 I’m still waiting to get my transfusion, I need two units instead of one. I believe they have one right now, but not the other one. Sighs! I’m a little nerves about the port, but I need it, because I don’t know how much more I can take getting stick. I saw my little lady yesterday, she didn’t want to leave me. I was so happy to see her. I told her I would call her and check on her, but I feel bad since I was in so much pain yesterday. I had forgotten to call my little lady. She didn’t want to talk to me today. I can’t blame her. I saw my doctor yesterday. I seem to have to start seen a sickle-cell doctor since I’m having more crisis then every before. Oh yea lucky me I have to add another pill to my collection. Sighs! If you all don’t know I hate taking medication. I can understand take them every now and then when you have pain, but to take them so you wont have pain is another story. Well that all for now, I do hope each and every one of you is having a lovely day.

 

 

P.s I’m so thankful for all the prayers and lovely comments, they truly help my day go by. God Bless:)

Posted in AWARENESS, My Journey, Sickle Cell Anemia

Living With Sickle Cell Anemia

Posted on by poeticjourney

Where should I begin, I haven’t been feeling good ever since last week. I had a little trip to E.R they didn’t keep me because well my count wasn’t low enough! Go figure right? Shrugs!  I started feeling better, but you know the saying calm before the storm right? Early Sunday Morning, it hit me hard and like a ton of bricks. I felt it in my legs,arms,back,etc. I smile when I wanted to cry, took plenty hot showers and bath just to feel a little relief. I had forgotten about bengay, it came to me in dream last night. I’m trying to hold out going back to hospital because of school, semester ends tomorrow. I have to be honest, I haven’t done any homework, every time I tried the pain go bad, sounds bad or like I have excuse not to finish my homework. I’m so ashamed, but if you ever felt bad you know exactly what I’m talking about. I’m so thankful for all the prayers and encouraging words, truly have touch me. I have one of the worse headaches, i don’t know how long I done had it. I’m just glad my back isn’t hurting, because it was painful to move or get up once I did sit down. I could go on and on with this post, but I do have to tempt to get some more homework done, but I do know for a fact if I’m not feeling better in the morning, I’ll be at the hospital dreading it all!  I must admit this is the worst I have felt since going into crisis and sharing with you all lovely people. I believe when I got introduce to the ideal of blogging about my illness,I was just starting out really to blogging here. It was bad then, and it’s not pretty now. So on that note, I hope everyone is having a lovely and bless night! God Bless 🙂

Posted in AWARENESS, My Journey, Sickle Cell Anemia

Living With Sickle Cell Anemia

Posted on by poeticjourney

No, I’m not in the hospital, I use numbers and count the days when I’m in hospital. Since I have been out, I haven’t been feeling my best. I’m trying not to stress because hey we all know what stress can truly do to our bodies. It ain’t pretty sight! I’m more worry about my blood count then anything right now.  Its been long time since I haven’t had to get transfusion, my count wasn’t all that high. I’m use to leaving hospital with either high 8 or 9 and last month it was 10. It kept going up to even when I visit my primary doctor. When I did visit the hospital the first time it was sort of high 8, but it drop to low 7 since I was in so much pain and it was going up to it reach 7.8 then a little bit more. So you think I should be, NEGATIVE. So since I’m not feeling my best, I was told to make a doctor appointment with my Primary Doctor. I already knew that wasnt going to happen, since I can get to his office on time and still be in there for almost four hours if not exactly four hours. If you wonder what the heck he be doing, you truly not alone. So I made the appointment with  my hemoglobin doctor. If I have to get transfusion, I plan on going for the port ASAP, I can’t take no more sticking and poking.

 

I started my JOURNEY with sharing my illness with ya’ll because I wanted to spread more AWARENESS on my illness. I must say I haven’t done a good job at all. Seems either I’m sick or school or you know we had the lovely holidays last year. I know I still have to do a post to explain what exactly it does and you know all that good stuff. I know everyone doesn’t know what it is exactly. I believe before I continue sharing my illness, I should share a post about it, and do trust me its coming very soon. I’m still struggling with catching up with my studies and staying on top of it. I hate when I’m behind and it takes forever to catch up, seems like that all I’m doing to be honest and its showing in my grades. So not happy when I’m so close to been done with my associate degree. I plan on getting my bachelor once I graduate. Off the topic, but wanted to share that little bit info with you all. I do hope everyone is having a BLESS Day/Night! God Bless

Posted in AWARENESS, Health, My Journey, Sickle Cell Anemia

Recovering/Information On Disease

Posted on by poeticjourney

I seem to be stuck with cold ever since I got out the hospital and can’t get rid of it for some odd reason. I never had this problem before getting over cold. The New year is almost here and have two new doctors to see coming up in a few weeks. One is for my headaches I was getting all the time. I don’t get them as much right now, which is a good thing. But after doing more searching about my disease and learning about why I could be having headaches everyday. I learn something that  I didn’t know that it could be cause of a tumor. Since I’m the only one in my house hold with my illness, its good for me to study on it and learn as much as possible. You do know with seen the different doctors I do have, they never mention anything about me having tumors. I don’t know if that a good thing or bad thing, part of me make me think they don’t believe it could be that serious for me and then other is they probably know I can’t handle no more awful news. Also the other doctor appointment is about why I have so many antibodies in my body. Since its hard to find my blood type, I like to say thank you to each and every one of you whose been praying for me and still praying for me and who donates blood or know someone who does. Last time it didn’t take long to find my blood type. I was so happy! I was just in the hospital that long because of a slow ignorant doctor. Seem like he don’t know how to talk to a lot of people’s, and think people s have to take his lip and attitude. Thats a negative! Hey my mouth is working process.  I had a good  Christmas, wasn’t down in my body or stuck in hospital, did have a doctor appointment before Christmas. It went sorta good and sorta not. Yay for getting took off one medicine and boo for getting put on a new one that suppose to be better for my headaches. If you don’t take medication on every day basic, you or truly bless, and don’t ever take it for granted.  If some had read up on my disease because I havent made it back to do all that good stuff. That post should be up sometimes this week. Different ones with my disease can take the medicine to help them have less crisis, but to be honest I never really needed it before I got put on it when I was younger and it didn’t;t agree with me. I almost died in 06, so that’s when I got introduce hydroxyurea.  I usually take Folic Acid, that been working for me every sense well shoo forever. Seem like I’m everywhere with my post today. I’m pretty sure more to come this week, hate to bore all of yall in one post. 🙂

 

 

I do love all my followers, you have truly been a BLESSING to me on my JOURNEY, can’t wait to see how 2012 goes for us. Many Blessings to each and every one of you, like to welcome all my new followers, and say glad to have you on my JOURNEY, can’t wait to get to know each and every one of you as the year goes out and as the new year comes in. God truly knows what he doing when he seen certain peoples in your life that you never expect to make a mark on you.

Posted in AWARENESS, Health, My Journey, Sickle Cell Anemia

Day 6, Living With Sickle Cell Anemia

Posted on by poeticjourney

Good Mornin, today I got the news I can go home which Im happy about. I receive two unit of blood and brought my count upto 10.something! I wasnt feeling my best yesterday. Was in a lot of pain after receiving the blood, I have to say im feeling much better this mornin. Hope and pray it stay this way.Like to thank each and everyone of you for your prayers and kind words! God Bless You All:)

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