Posted in 2014, AWARENESS, Health, My Journey, Sickle Cell Anemia

Day 1-3, Living With Sickle Cell Anemia

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Hey and welcome to my world. I have been in pain for a few days. Im In hospital, and hoping to go home soon. I know it won’t be with good news. Its been awhile since I been In hospital, and transfusions.  Right now my test came back to hurt my heart. I have a good doctor and some good nurses, had a problem with her lastnight. I have port for a reason and I don’t like when people try and bs me, talking about they can’t draw from it. So I gave the tech one chance and she didn’t want to do it, cause she knew the nurse was lying. Blood count has drop, its in the 7s, but still good for men but would love to be in the 8s. I hope everyone is well. I do have a feeling I’m forgetting so something, but I do update when it comes to me. God Bless

Posted in 2014, AWARENESS, heart, My Journey, Sickle Cell Anemia, Update

Living With Sickle Cell Anemia

thumbnailSCDToday wasn’t a good day! My pain has got worse since last post. I went to primary doctor, honestly didn’t do me no good! He treated me either kidney problems or either I got ulcer. I can’t sleep at night as it is. My sickle cell nurse told me if it get worse to go to hospital and get admitted! My primary wasn’t getting my sickle cell problem, I wasn’t worry about the problems he talking about! If I stress it kick my illness in worse 10 time worser! I can’t move or use both my arms to extent! My left side still bugging me. My second week of new term started today. So as you all know that been with me. This isn’t looking to good with stress. I have appointment with blood doctor tomorrow and I’m not even feeling him right now cause of all the pain I’m in. You can’t stick me! Nor check my blood pressure at this point in time. Now if they can get blood from my port that’s what’s up! But I ain’t having the abuse right now. To the next post. God Bless 🙂

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Posted in My Journey, Physical Therapy, Update

Surgery Update Pt.3

Hey Everyone, I’m a few days late with the post, been trying finish term out. Sad that I have retake one of my classes, and I’m glad I have to do it. Because that class was so over my head.lol my doctor appointment went good. No damage was done from a few weeks ago, which I’m happy about 🙂 I did get approve for more physical therapy. It has been two months since my surgery, that was actually on Saturday on my dad birthday. Tuesday I was a little worry because I woke up with my hip hurting me, it was because of the weather. It was the first time since the surgery since I had pain like that. Im just glad everything is going good with my healing process,still having problems sleeping at night. I don’t go back to him to August, which is good in my book. Thank you all for all the prayers thru my hard times and good times.

Posted in God, Health, My Journey, Physical Therapy, Sickle Cell Anemia, Update

Surgery Update Pt.2

Today l had my first doctor appointment since my surgery. It went good and was so glad to get the staples out and didn’t hurt.I was worry for nothing. Had a lot of people telling me everything would be okay. I need physical therapy for awhile. Can’t wait to see how everything goes when I return in six weeks. I’m praying for a smooth rest of the year with my health! The X-ray came out good, and showed everything going smoothly 🙂 God is Good!

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Posted in Faith, God, Health, My Journey, Sickle Cell Anemia

Update ( doctor appointment)

I’m still not feeling my best, but as of right now waiting on my blood work, so we can get things moving. My doctor appointment with primary doctor went very well to extent, I was glad to get off some medicine. And also got new poison to help me as we’ll. My headaches are getting worse, so we had to do something to help the process. I have been putting off doing update post for awhile, but with my hectic school schedule and days I’m not at my best, I wanted to share what I can. I know last year was worse then this year, the last two sickle cell episode took me back when I was younger and wouldn’t go to hospital. I haven’t had pain like that in long time, bring tears to my eyes, and no matter what they medicate me with me it wouldn’t work. I know I shared a post awhile back, I’m not been able to get transfuse, cause of warm antibiotics. I pray if it got lower then 5, they would transfuse even if it didn’t do much. Yes, I really had no reason to share post last time i was hospitalize since I know its a give or take, but I know God got me even when the doctors wanting to give me blood and I kept denied it. My blood count came up fast this time in the 8″s. I’m praying when I see my blood doctor next week it still be decent enough. I’m not going give up, I do get discourage at times, but im Bless with so many loving souls. God truly knew what he was doing when he created me , and when he place me here on WordPress to share my story. Thank you all for joining me and praying. I hope to have more share next week. God Bless 😉

No matter what you going through, never give up! Continue to fight and hold on to God hands!

Posted in Health, My Journey, Sickle Cell Anemia, Update

Day 4-5 Living With Sickle Cell Anemia

thumbnailSCDHey and Welcome to my World, I’m still in hospital and hopefully I get to come home tomorrow. I should know something in due time. I still can’t have transfusions, but it seem the meds they have me on is finally working and that makes me happy! I have been on some new meds since May, and ready to get off it. I’m actually on a lot of new meds, but this meds I really ready to get off because it’s interfering with some of my other meds, that I need on everything basic. Sighs. It feels good to finally get some sleep, I believe I’m still tired, but I’m actually on my last week of studies, and I need to try to catch up before the week is over with. So much to do in so little time. I have had some great nurses, had one rude nurse name Mary. Makes me wonder how she got a job to be Nurse Assistant, if all she does is complain, I would hate for her to be nurse, and she says she going back to school for it. Well, I hope peeps run the other way and don’t look back, I’m just saying. My bestie mom finally came home from the hospital the other day, and she is doing much better, but got heartbroken phone call, that she is not her self, she lost some of her memory. I spoke with her a few days ago, she knows who I am. It breaks my heart when strong woman a God is struggling the way she is. It’s truly breaking her daughter heart, because she want to take care of her mom and not rehab place. Doctor just told me not to long ago that my retic count has come up, I’m hoping to hear my blood count has come up as well. I’m praying for some good news. Looks like my head is everywhere with this post, please do forgive me. I have a lot going on with me at this time. Thank you all for the prayers, truly means a lot to me. I pray all is well with each and every one of you. God Bless 🙂

Posted in AWARENESS, Health, My Journey, Sickle Cell Anemia

Day 1-3, Living With Sickle Cell Anemia

Hey Everyone and welcome go my world!  I have been in hospital since Monday. I actually got sick Sunday night around 11, and knew I was in for rough night! My blood count was.7.9 when I arrived, now it 6.9! I know I mention in one of my post I had a cold, idk if that help kick in my sickle cell. Sounds like I I’m coughing up my lungs. Sighs! I have, some awesome nurses so that’s a plus in my book.  Be sweet if I could get some sleep! But my pain is making it difficult for me right now! Actually spoke to my doctor before he went on vocation, he was the E.R when I came in, so he fill the doctor in that’s stepping in for him about my situation. I still can’t receive transfusions right now. Another story for another time. If anything else comes up, ill make sure keep y’all updated! God Bless 🙂

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Posted in AWARENESS, Health, My Journey, Sickle Cell Anemia, Update

Living With Sickle Cell Anemia…

thumbnailSCDHey Everyone, And welcome to my world, basically a update from my two checkups. Not good updates, but hey I’m still alive, so I can’t complain. Right now Im waiting on phone call, on my blood work, lets just say I wasn’t happy about gettting stuck by a person who didnt know what they was doing. Bad enough my doctor was on vocation and I had lady who didnt know what she was talking about, so ummm she didnt order all the blood work I need’d. So I got a feeling when I do get a call, Its not going to be a good one. Makes you wonder why give me a appointment when the person I need to see when they on vocation? I don’t believe she like my attitude much, if you come in talking like you know everything I had while I was in hospital.. You already on my bad side. Sighs…

 

Primary doctor update didn’t go so well either, I had to wait awhile just to be seen… Add’d more poison to the list, for me to take. Since everything I eat, makes me feel uneasy, now I have ear infection on top of that. Im debating on taking more meds. My headaches have gotten worser, and trying to go to school with them is no joke. I dont want my meds up, because I would sleep all day,and I do enough sleeping as it is due to my health. So I believe I didn’t forget anything, if so I share in another post when I have another doctor appointment next month.

Posted in AWARENESS, Health, My Journey, Sickle Cell Anemia

Day 5-8, Living With Sickle Cell Anemia

thumbnailSCDHello Everyone, This has been one long week. I don’t believe I have been this sick in a long time. I havent been in the mood to blog are do much of anything. I actually started back with my studies Wednesday and havent even tempted to do any of it. I’m hoping to do some of it. I actually made calls yesterday to let them know whats going on, with me. I don’t want to be drop from my classes. I didn’t get transfusion because it’s not in my best interest, but part of me wish I had got it. I’m so weak. My blood count is still low but still holding its low. I’m 5.8 so it’s coming up a lil. So that good 🙂 I got off the fluids yesterday, which im very happy about, I got tired of going to the bathroom so much. I still have my port hook up since I still have to get pain meds, since Im still hurting. Yesterday they actually lost someone on my floor she was 100yrs ole. She was blessed to live to see such a bless age. My nurse took it hard, and I can truly understand where she was coming from. Thank you all for the prayers and comments, and do bare with me. I havent had the chance to approve comments. Even the likes means a lot to me 🙂 Im hoping to go home today are tomorrow. It maybe tomorrow because im not feeling my  best today, and I want to be at my best when I head home. I did get a chance to talk to my lil lady and she ready for me to come home to her. And im ready to come home to her as well. I told her to be good, so I hope she does, but that easy said then done.   I have had some great group of nurses, doctor. Cant really say doctors, because I only been seen one doctor. I have to make a post about that another time, right now I feel like laying back down and getting some more rest. I pray everyone is having a Bless Friday.

Posted in AWARENESS, family, Health, Lord, My Journey, Sickle Cell Anemia

Day 1-4 Living With Sickle Cell Anemia

thumbnailSCDHello Everyone,  I have been in hospital since Friday! I know its been awhile since I posted on my illness. Thursday Night, I got slap with pain in my right leg, but was hoping it would go away on its own. But early Friday Morning, and ended up getting worse and led me to ER and later on getting put in hospital. I havent had this kind of pain since I was in my teens, and I must say my early teens, broughts tears to my eyes. I couldnt walk, I can walk better today then I could a few days ago. Thank you Lord! When I posted a poem on my birthday, Fighting 2 Leave, I cant have tranfusion, so Im praying that my blood count comes back up. They was in process of looking for my blood type, but like I told them I cant have transfusion. it would do more harm to me then good.I have had some great nurses and of course doctors as well. I have a lil nut of nurse right now. Just something abou that woman. I may have to get to know her lil more. Shes the only new nurse  I done had so far, the others I done seen once before. I got a beautiful surprise for Fathers Day. I thought I wasnt going to see my dad, and he surprise me when he walk through the door with the lil ones and my brother and mom. I call him early yesterday morning to tell him I love him and Happy Fathers Day. First time been away from my ole man on Fathers Day. I pray all the fathers had a lovely day, and all the mothers who stepping in to do both the jobs as well. God Bless 🙂