Category: Sickle Cell Anemia

Posted in AWARENESS, My Journey, Sickle Cell Anemia

Living With Sickle Cell Anemia

Posted on by poeticjourney

No, I’m not in the hospital, I use numbers and count the days when I’m in hospital. Since I have been out, I haven’t been feeling my best. I’m trying not to stress because hey we all know what stress can truly do to our bodies. It ain’t pretty sight! I’m more worry about my blood count then anything right now.  Its been long time since I haven’t had to get transfusion, my count wasn’t all that high. I’m use to leaving hospital with either high 8 or 9 and last month it was 10. It kept going up to even when I visit my primary doctor. When I did visit the hospital the first time it was sort of high 8, but it drop to low 7 since I was in so much pain and it was going up to it reach 7.8 then a little bit more. So you think I should be, NEGATIVE. So since I’m not feeling my best, I was told to make a doctor appointment with my Primary Doctor. I already knew that wasnt going to happen, since I can get to his office on time and still be in there for almost four hours if not exactly four hours. If you wonder what the heck he be doing, you truly not alone. So I made the appointment with  my hemoglobin doctor. If I have to get transfusion, I plan on going for the port ASAP, I can’t take no more sticking and poking.

 

I started my JOURNEY with sharing my illness with ya’ll because I wanted to spread more AWARENESS on my illness. I must say I haven’t done a good job at all. Seems either I’m sick or school or you know we had the lovely holidays last year. I know I still have to do a post to explain what exactly it does and you know all that good stuff. I know everyone doesn’t know what it is exactly. I believe before I continue sharing my illness, I should share a post about it, and do trust me its coming very soon. I’m still struggling with catching up with my studies and staying on top of it. I hate when I’m behind and it takes forever to catch up, seems like that all I’m doing to be honest and its showing in my grades. So not happy when I’m so close to been done with my associate degree. I plan on getting my bachelor once I graduate. Off the topic, but wanted to share that little bit info with you all. I do hope everyone is having a BLESS Day/Night! God Bless

Posted in My Journey, poem, Poetry, Sickle Cell Anemia

Laying In Bed

Posted on by poeticjourney

Laying In bed

tossing & turning

Trying to get right

Laying quietly in

my room

I heard babies crying,

while some are playing.

Poor littles one in pain

Pain so intense

I couldn’t sleep.

Praying just to get

some Zzzz’s

I.V in  sore spot

driving me crazy

As my pain intense

so does the I.V

Laying in bed

Tossing & Turning

Thanking

GOD

 for never leaving me!

Morning came

new nurses arrived

he showed me to never

lose FAITH

Laying in bed

oxygen on point

blood pressure

not looking so good

Tossing & Turning

praying to be able to

go home soon and

be pain-free

1/17/12

PoeticJourney

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As you can see I had a lot on my mind. I know for a fact I will be adding more to it, if I don’t get to busy with homework.

Posted in Sickle Cell Anemia

Day 5, Living With Sickle Cell Anemia

Posted on by poeticjourney

Hello Everyone,

Time to share some news with ya’ll. As of last night I received new my count is going up. It’s not all that good, long as it’s not 7 something, I can totally dig it! lol! So I was told I could go home tomorrow! YAY! Its Morning, I have had my cup of coffee & bacon on the side! lol If you wondering if I had anything else on my tray, surely did. It was muffin, I didn’t touch it! Finally seen the doctor this morning, he ask me if I wanted to go home. UMMMMMM…… What kind of question is that? I said yes, if you wondering if I’m feeling my best. The question is NO, but I’m ready to be home. I know I’ll do what I need to do to prevent my immune system from getting attack again. The weather is no joke here. SPRING I NEED YOU! I’m just saying! 🙂 I can’t even tell you the last time I was in hospital that I didn’t have to get transfusion. So thank to everyone who has been praying for a speedy recovery. I have had so many great nurses, since I have been here. Can’t say the same for what they been trying to feed me. Not even going to go there right now!

 

 

HOPE EVERYONE IS HAVING A BLESS MONDAY!

Posted in My Journey, Sickle Cell Anemia

Day 4, Living With Sickle Cell Anemia

Posted on by poeticjourney

Hello Everyone,

Time to share some of my day with you. Still in the hospital, have seen the doctor. I have finally saw the doctor and right now at 5 I’ll be getting my blood check and praying It still good or even better. I’ll let you all know how that goes. I’m ready to start feeling better so I can go home and enjoy the craziness of my family. Trying to do my homework but its hard with only one hand to use. I can’t use my right hand because of the I.V been in an uncomfortable spot for me. And I’m not trying to get stuck again. If things don’t go well with my blood count, then maybe I’ll have to get another I.V thats for another post! I have great nurse who I met years ago. It’s good to see a familiar face when you in unpleasant place. I actually miss doing some poetry, I have been thinking of a few pieces to write but havent had the strength to type, I wouldn’t dare write since I wouldn’t be able to understand.

before I end the post I would love TO THANK EACH & EVERYONE OF YOU FOR PRAYING, KEEPING ME IN YOUR THOUGHTS, AS WELL ENCOURAGEMENT! GOD BLESS EACH & EVERYONE OF YOU 🙂

GOD TRULY BLESS ME WITH EACH & EVERYONE OF YOU

Posted in My Journey, Sickle Cell Anemia

Day 3, Living With Sickle Cell Anemia

Posted on by poeticjourney

Well got a little good news today. My account went up some,but still low,but if it keep going up. NO TRANFUSION! Yay! I have been in bed majority of the day getting some good sleep. Headache been kicking my butt:( Its cold and I wish Spring was already here for me. Havent seen the doctor yet today, not sure how I feel about that. I’m just glad it’s not the rude doctor from before. Yes, if you wondering if I complain about him too my doctors. the answer is yes! Guess I should get to doing a little homework while the pain is gone. Thank each and every one of you for praying for me, asking how im doing. your encouragement! God Bless

Posted in Health, My Journey, poem, Poetry, Sickle Cell Anemia

Look into my Eyes

Posted on by poeticjourney

They tell a story of what

 I been through

shows my pain,frustration

They hide so many things,

but not the intensity of

my pain, that sends me away

from my love ones

Look Into My Eye’s

What do you see?

Do you see inside my soul?

Do you see my heart crying out?

Make sure you don’t stare,

just be honest and let me

know when they change.

Look Into My Eye’s

They betrays me at times

So many time’s

I had to cover up and push on

Look Into My Eye’s

Tell me what you see?

1/3-4/12

PoeticJourney

MyFreeCopyright.com Registered & Protected
The poem is inspired by my illness.  With Sickle Cell Anemia, my eye’s or normally yellow, but when I’m feeling bad there turns a little more yellow.  That is when I have to worry, and drink my liquid. Let me tell you feels like I’m drinking too much water. lol

Posted in AWARENESS, Health, My Journey, Sickle Cell Anemia

Recovering/Information On Disease

Posted on by poeticjourney

I seem to be stuck with cold ever since I got out the hospital and can’t get rid of it for some odd reason. I never had this problem before getting over cold. The New year is almost here and have two new doctors to see coming up in a few weeks. One is for my headaches I was getting all the time. I don’t get them as much right now, which is a good thing. But after doing more searching about my disease and learning about why I could be having headaches everyday. I learn something that  I didn’t know that it could be cause of a tumor. Since I’m the only one in my house hold with my illness, its good for me to study on it and learn as much as possible. You do know with seen the different doctors I do have, they never mention anything about me having tumors. I don’t know if that a good thing or bad thing, part of me make me think they don’t believe it could be that serious for me and then other is they probably know I can’t handle no more awful news. Also the other doctor appointment is about why I have so many antibodies in my body. Since its hard to find my blood type, I like to say thank you to each and every one of you whose been praying for me and still praying for me and who donates blood or know someone who does. Last time it didn’t take long to find my blood type. I was so happy! I was just in the hospital that long because of a slow ignorant doctor. Seem like he don’t know how to talk to a lot of people’s, and think people s have to take his lip and attitude. Thats a negative! Hey my mouth is working process.  I had a good  Christmas, wasn’t down in my body or stuck in hospital, did have a doctor appointment before Christmas. It went sorta good and sorta not. Yay for getting took off one medicine and boo for getting put on a new one that suppose to be better for my headaches. If you don’t take medication on every day basic, you or truly bless, and don’t ever take it for granted.  If some had read up on my disease because I havent made it back to do all that good stuff. That post should be up sometimes this week. Different ones with my disease can take the medicine to help them have less crisis, but to be honest I never really needed it before I got put on it when I was younger and it didn’t;t agree with me. I almost died in 06, so that’s when I got introduce hydroxyurea.  I usually take Folic Acid, that been working for me every sense well shoo forever. Seem like I’m everywhere with my post today. I’m pretty sure more to come this week, hate to bore all of yall in one post. 🙂

 

 

I do love all my followers, you have truly been a BLESSING to me on my JOURNEY, can’t wait to see how 2012 goes for us. Many Blessings to each and every one of you, like to welcome all my new followers, and say glad to have you on my JOURNEY, can’t wait to get to know each and every one of you as the year goes out and as the new year comes in. God truly knows what he doing when he seen certain peoples in your life that you never expect to make a mark on you.

Posted in God, Health, Jesus, My Journey, poem, Poetry, Sickle Cell Anemia

Let Go

Posted on by poeticjourney

Devil take your hand off of me

I want to be free

GOD

I know you see the different struggles

I been going through

I done seen my share of doctors and hospitals

And nurses

GOD

I feel like my body is losing the battle

I’m questioning my health

But I know you have the last say so

I done experience Depression for awhile

I done wanted to give up and walk away

Devil let go of me

I may be struggling but I’m not ready

To lose the fight

I have been fighting all my life

GOD

I know you have a plan for me

I’m a living testimony

Your son JESUS didn’t have it easy

So why would I?

I’m holding on but sometimes

It feels like I’m holding on

To my last string of HOPE

Devil takes your hand off of me

You can’t have me

12/24/11

PoeticJourney

Still working process

MyFreeCopyright.com Registered & Protected

He doesn’t care what you going through, he know when you having a rough time and know when the right time to attack you when you at your lowest! 2011 is almost over and it hasn’t been easy for me or my family, but I;m speaking from my eyes right now. I been struggling with a lot and still have a long way to go to I accomplish what need to be done.  I Hope Everyone Have A Bless Christmas!